Health working on a project to evaluate the quality of life of Murcia with systemic lupus erythematosus

The CEO of geriatric Planning, Pharmacy and Citizen states that "the objective is to identify opportunities to help improve the quality of life of these patients "

In the Region of Murcia, as different studies suggest the incidence of systemic lupus erythematosus is estimated around 5,000 affected, and is more common among women

The Directorate General of geriatric Planning, Pharmacy and Citizen, through the Information System on Rare Diseases (SIER) under the Health Service Planning and Finance, working on a project to evaluate the quality of life of Murcia with lupus erythematosus systemic.

This project, in which professionals from the Ministry of Health and Social Policy participate is being conducted in collaboration with the Department of Sociosanitary University of Murcia, and is projected to the end of 2014 the first results can be published.

Director General Arturo Giménez valued today interagency collaboration, which said that "in certain contexts such as this, in which we have a low prevalence disease and on which little research is essential to obtain an overview and multidisciplinary. "

Gimenez said that systemic lupus erythematosus is a condition that causes "a big impact" on family, social and working environment of those who suffer, so that "this project is duly justified to further progress in the disease and enhance the quality of life for patients. "

To carry out this study was mailed to a representative sample of people affected by systemic lupus erythematosus, 550 people, a questionnaire with different scales to measure quality of life, disease severity and the degree of treatment adherence .

Thus, we have collected sociodemographic variables that are being introduced anonymously in a database to perform an analysis of the degree of compliance with drug treatments prescribed by doctors to alleviate the symptoms of this disease.

Lupus erythematosus in Region

Systemic lupus erythematosus is a chronic inflammatory autoimmune disease of unknown etiology and nature with a prevalence of 300 to 400 patients per 1,000 inhabitants, and is more common among women, with a ratio of one man for every eleven women.

In the region, according to various studies suggest, is estimated to be about 5,000 affected.

Considering the gender distribution, the majority, 86 percent, are women;

and age, the strip with the highest incidence, 77 percent is between 15 and 59 years.

Source: CARM

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